Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Dec 14 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 12/14/25 Jan 18 Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult Jan 19 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 1/19/26 Feb 8 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 2/8/26 View Calendar Recent Posts New Global Guidelines Issued for Vanishing White Matter (VWM) Research Summaries October 2025 New Global Patient Registry for MicrogliopathiesGlia New Research: Endogenous Repair in Vanishing White Matter Calyx: New Clinical Trial in cALD In Memorial and Honor: May – September 2025 Teagan’s Story Positive Results Announced for Alexander Disease Clinical Trial Kim’s Story Moa’s Story Read More News Share your story Read Stories
Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult
