Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Nov 17 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 11/17/25 Dec 14 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 12/14/25 Jan 18 Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult Jan 19 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 1/19/26 Feb 8 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 2/8/26 View Calendar Recent Posts New Global Patient Registry for MicrogliopathiesGlia New Research: Endogenous Repair in Vanishing White Matter Calyx: New Clinical Trial in cALD In Memorial and Honor: May – September 2025 Teagan’s Story Positive Results Announced for Alexander Disease Clinical Trial Kim’s Story Moa’s Story The Hidden Impact of Vanishing White Matter (VWM) on Families Johana’s and Ella’s Story Read More News Share your story Read Stories
Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult
