upcoming events

Event Information:

  • Thu
    14
    May
    2020
    Sat
    16
    May
    2020

    Living Rare, Living Stronger 2020

    Rock & Roll Hall of Fame Cleveland, Ohio

    NORD

    Its agenda provides patients and families with practical tools for living their best lives with rare diseases and physicians and medical students with insights to take back to their practices and studies.

    https://rarediseases.org/living-rare-forum/


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Sam Buck, VWM

“Until February 2013, our 2-year-old son Sam was completely normal child, no problems with his pregnancy or birth, he met every milestone, and overall was…
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