Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Nov 9 Featured Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: First Aid and CPR Webinar: Modified strategies that guide you to care for your child safely and confidently Nov 17 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 11/17/25 Dec 14 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 12/14/25 Jan 18 Featured Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult Jan 19 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 1/19/26 View Calendar Recent Posts Calyx: New Clinical Trial in cALD In Memorial and Honor: May – September 2025 Teagan’s Story Positive Results Announced for Alexander Disease Clinical Trial Kim’s Story Moa’s Story The Hidden Impact of Vanishing White Matter (VWM) on Families Johana’s and Ella’s Story Minoryx’s Leriglitazone MAA for cALD Validated by EMA In Memorial and Honor: March and April 2025 Read More News Share your story Read Stories
Featured Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: First Aid and CPR Webinar: Modified strategies that guide you to care for your child safely and confidently
Featured Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult
