News and Events

upcoming events

Event Information:

Wed
13
Jan
2021
Sat
16
Jan
2021

RE(ACT) Congress and IRDiRC Conference 2021
Berlin, Germany
The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium

It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research.

https://www.react-congress.org/about/

Latest news

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

Newborn Screening Saves Lives Reauthorization

ulfunited June 23, 2020 No Comments

Thank you ALL for supporting last year’s sign on letter to add language to Newborn Screening Saves Lives Reauthorization which would fund states in order…

Read More

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

Research Study: Impact of COVID-19 on People Living with Rare Diseases and Their Families

ulfunited June 22, 2020 No Comments

The novel coronavirus pandemic can have a serious impact on people with rare diseases and their families. Yet, not much is known about it. We…

Read More

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

Patient Focused Drug Development Meeting on Krabbe Disease

ulfunited June 8, 2020 No Comments

NORD invites you to register for an externally-led Patient-Focused Drug Development (EL- PFDD) virtual meeting on Krabbe disease, taking place Thursday, October 29, 12:30 – 4:30 pm…

Read More

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

Taking Care of Yourself When Taking Care of Others

ulfunited May 21, 2020 No Comments

from BlueCross BlueShield of Illinois Look around and you’ll see caregivers. In the U.S., 1 in 3 adults give care to others. Caregivers may be…

Read More

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

Minoryx Nexus Clinical Study for cALD

ulfunited May 13, 2020 No Comments

Minoryx Therapeutics is recruiting for a clinical trial focusing on cALD in Europe. The NEXUS clinical trial is a phase 2, open-label clinical study designed…

Read More

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

#GivingTuesdayNow is May 5, 2020

ulfunited April 25, 2020 No Comments

Join the Global Day of Giving and Unity! #GivingTuesdayNow is set to take place on May 5, 2020 as an emergency response to the unprecedented…

Read More

Share your story

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

Dylan Joseph Changle, Krabbe Disease

ulfunited May 26, 2020 No Comments

Dylan was born on April 15, 2009, Daddy’s Little tax Deduction! For the first 5 months he progressed like a normal child, until one day,…

Read More

<img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" alt="" data-srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" data-src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" data-sizes="(max-width: 1024px) 100vw, 1024px" class="attachment-large size-large lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img width="1024" height="256" src="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png" class="attachment-large size-large" alt="" srcset="https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-1024x256.png 1024w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-300x75.png 300w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1-768x192.png 768w, https://secureservercdn.net/198.71.233.47/0zv.8e8.myftpupload.com/wp-content/uploads/2020/04/News-1.png 1200w" sizes="(max-width: 1024px) 100vw, 1024px" />

Kristie DeMarco, Refsum Disease

ulfunited May 26, 2020 No Comments

From PatientWorthy.com After coming back from the Global Genes conference, Kristie was convinced that establishing a foundation was the right next step to advocate for…

Read More

Sam Buck, VWM

ulfunited April 22, 2020 No Comments

“Until February 2013, our 2-year-old son Sam was completely normal child, no problems with his pregnancy or birth, he met every milestone, and overall was…

Read More

Read More Stories