Family Conference Scholarship

We look forward to seeing you June 22-24, 2023!

The ULF is dedicated to ensuring that families who want to join us at the Family Conference are able to – regardless of financial hardship. If your family is in need of financial assistance to attend this year’s Family Conference, please carefully read the guidelines below and fill out the application.

General Scholarship Guidelines

• Families affected by any type of leukodystrophy can apply. Families from all over the world are welcome and eligible to receive a scholarship.
• There is a limited amount of scholarship money available, and we have some funds that sponsor specific types of leukodystrophy.
• The scholarship will cover…
  • Registration costs for two adults, and three children ($80 value). This includes 8 meals during the event: dinner on Thursday, breakfast, lunch and dinner on Friday and Saturday, and breakfast on Sunday.
  • Three-night’s stay (room rates and taxes) for one room.
  • When booking a room, you will be asked to put down a credit card to hold the room. Your card will only be charged in the event that extra items are charged to the room (room service, movie rentals, etc.).
• The scholarship DOES NOT cover…
  • Travel expenses to or from the hotel.
  • Merchandise or additional drink tickets for dinners.
  • Meals or snacks purchased outside of the meals provided by the ULF.
  • Additional adult or children attendees in excess of the ones covered by the scholarship – these attendees will need to register separately and pay applicable registration fees.
• Scholarship recipients are required to actively participate and attend sessions throughout the entire Family Conference (Friday and Saturday).
• The ULF reserves the right to revoke a scholarship from recipients if…
  • It is determined that scholarship recipients are not attending ULF sessions.
  • Recipients are being disrespectful towards other attendees, ULF staff or volunteers, speakers, or hotel staff, or engaging in behavior this is disruptive to the event.
  • Revocation of a scholarship will include the full hotel charge being placed on the credit card on file and immediate ejection from the event.

Applications Due April 3, 2023

Thanks to the generosity of a family from the ULF Community, we have the opportunity to provide a travel stipend for a family with a newly-diagnosed child. By applying for the ULF Scholarship, you will be considered for this stipend separately and we will reach out to the selected family in April with further details.

First Name *

Last Name *

Email *

Phone Number *

Mailing Address *

Address Line 1

Address Line 2

City

State / Province / Region

Postal Code

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What type of leukodystrophy is your family affected by? *

What year were you or your affected family member(s) officially diagnosed? *

How old is your affected person? *

How many adults (18+, including yourself) will be attending? *

How many children (17 & Under) will be attending? *

Have you attended the Family Conference in person previously? If yes, which year(s)? *

Have you received a scholarship or financial assistance from the ULF previously? If yes, which year(s)? *

Scholarship Guidelines Agreement *

• I have read the scholarship guidelines and agree to adhere to them. If I or a member of my group is found to be in violation of the guidelines, I understand that the scholarship could be revoked; this may include the full hotel charge (approx. $475) being placed on my credit card.

If this box is left unchecked, your application will not be considered. All applicants must agree to the guidelines outlined. Please read them carefully.

Would you or a family member be willing to volunteer at the Conference for no more than 3 hours on Friday or Saturday? *

• Yes
• No

Answering no does not disqualify you from receiving the scholarship. Volunteering is not a mandatory requirement. Answering yes means a ULF staff person will reach out to you to discuss what needs the ULF has for volunteers and where you may be a good fit. This will not interfere with your attendance of your type specific session.

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