ULF Announces 2016 Research Grant Awardees

In December, the ULF Scientific Review Committee reviewed the many, high-quality research grant applications that were submitted from around the world for ULF funding. We received 3 times as many proposals this round than last, and we appreciate all of the excellent proposal submissions from devoted scientists.

The United Leukodystrophy Foundation congratulates these gifted researchers, who each received a grant of $33,000 to support their projects:

 –  Dr. Tracy Hagemann with the University of Wisconsin-Madison

 Her topic is “Use of Antisense Oligoneucleotides as a Therapeutic Approach for Alexander Disease.”

–  Dr. Quasar Padiath with the University of Pittsburgh

His topic is “Identification of Potential Drug Therapies for Autosomal Dominant Leukodystrophy.”

Thank you to all of you who have made donations to the ULF, which allows us to support vital research proposals, in our efforts to advance the science and discover new therapies for our patients. With your help, we look forward to increasing our research funding level again in 2017.


Our Mission

The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment, and prevention.


About Us

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies.

Leukodystrophies make up a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted.

The ULF is supported solely by individual donations and corporate support.


Support life-saving science — Please donate today!

Scientific advancements will improve the lives of affected families!

Researchers are making critical, groundbreaking discoveries every year. But they require funding to keep going.

The United Leukodystrophy Foundation has increased its goal for research funding in 2016. We’re supporting innovative advances for new therapies to finally put an end to the debilitating leukodystrophies.

Support the science to find a cure for Leukodystrophy.

Please help us make a difference. Be a part of the science that will transform the lives of those suffering with the disease.

Every gift counts. Large or small, every gift matters.

Please make your tax-deductible gift today!


     United Leukodystrophy Foundation

     224 N. Second Street, Suite 2

     DeKalb, IL.  60115