Holiday Shopping

Please support the United Leukodystrophy Foundation when you order holiday gifts on Amazon. Register at AmazonSmile before making your purchases. A percentage of each sale comes back to the ULF. How easy is that?!



Our Mission

The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment, and prevention.


About Us

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies.

Leukodystrophies make up a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted.

The ULF is supported solely by individual donations and corporate support.


Support life-saving science — Please donate today!

Scientific advancements will improve the lives of affected families!

Researchers are making critical, groundbreaking discoveries every year. But they require funding to keep going.

The United Leukodystrophy Foundation has increased its goal for research funding in 2016. We’re supporting innovative advances for new therapies to finally put an end to the debilitating leukodystrophies.

Support the science to find a cure for Leukodystrophy.

Please help us make a difference. Be a part of the science that will transform the lives of those suffering with the disease.

Every gift counts. Large or small, every gift matters.

Please make your tax-deductible gift today!


     United Leukodystrophy Foundation

     224 N. Second Street, Suite 2

     DeKalb, IL.  60115