Leadership

The ULF Board of Directors works very closely with the Medical and Scientific Advisory Board to establish and execute a strategic plan that serves our mission and vision with the ULF community at the very forefront.

Board Of Directors

President:

Ron Chapleau
Kincardine, Ontario, Canada

Vice President:

Dr. Stephanie Keller
Atlanta, Georgia

Treasurer:

Donna Skwirut
Palos Park, Illinois

Secretary:

Shannon Reed
Terrell, Texas

Directors:

Dr. Mousumi Bose
Maplewood, New Jersey

Marcie Flores
Joliet, Illinois

Amber Freed
Frisco, Texas

Dr. Joseph Hacia
Los Angeles, California

Michele Herndon
St. Louis, Missouri

Greg Huffer
Farmington Hills, Michigan

John Kaprich
Ankeny, Iowa

Margaret McIntyre
Chicago, Illinois

Marilyn Schmiedel
Pflugerville, Texas


Medical and scientific advisory board

Chair:

Genevieve Bernard, MD, FRCPC
McGill University
Montreal, Quebec, Canada
View Bio | View Website

Vice Chair:

Keith Van Haren, MD
Stanford University Medical Center
Palo Alto, California
View Website

Directors:

Caroline Bergner, MD
University Hospital Leipzig
Leipzig, Germany
View Website

Enrico Bertini, MD
Bambino Gesu’ Children’s Research Hospital
Rome, Italy
View Website

Joshua Bonkowsky, MD, PhD
Primary Children’s Hospital
Salt Lake City, Utah
View Website

Andrea DeBarber, PhD
Oregon Health and Science University
Salt Lake City, Utah
View Website

Marc Engelen, MD, PhD
Amsterdam UMC
Amsterdam, The Netherlands
View Website

Stephan Kemp, PhD
Amsterdam UMC
Amsterdam, The Netherlands
View Website

Troy Lund, MSMS, FAAP, MD, PhD
University of Minnesota
Minneapolis, Minnesota
View Website

Gustavo H. B. Maegawa, MD, PhD, FACMG
Columbia University Irving Medical Center
New York, New York
View Website

Patricia L Musolino MD, PhD
Massachusetts General Hospital
Harvard Medical School
Boston, Massachusetts
View Website

Christina Nemeth Mertz, PhD
Kennedy Krieger Institute
Baltimore, Maryland
View Website

Deborah Renaud, MD
Mayo Clinic
Rochester, Minnesota
View Website

Davide Tonduti, MD, PhD
V. Buzzi Children’s Hospital
Milano, Italy
View Website

Adeline Vanderver, MD
Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania
View Website

Nicole I. Wolf, MD, PhD
Amsterdam UMC
Amsterdam, The Netherlands
View Website


The ULF Team

Diane Fennimore, Executive Director

Tara Nuñez, Financial and Operations

Bob Rauner, Director of Donor Relations

Contact us at [email protected]