Where Families Impacted by Krabbe disease Can Connect, Share, and Learn KrabbeConnect will be hosting thier first in-person #curekrabbe Family Conference in Tampa Florida Location: Westin Tampa Waterside, 725 South Harbour Island Boulevard What you can expect from the conference: This family conference will feature scientific, advocacy, and family support sessions. The Family Conference will …
The Scientific Symposium is a meeting for research, medical, and industry professionals. The one-day meeting takes place on the day before the Family Conference and allows physicians, researchers, and more to share projects, discuss ideas, and network in a professional setting. At this time, the Scientific Meeting is only open to medical and scientific professionals. …
The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also …
