64th NAF Annual Ataxia Conference

National Ataxia Foundation is excited to host the 2021 conference 100% online, broadening the event’s reach and making it accessible to our global community. Whether this is your first time attending AAC or your 64th, we welcome you to enjoy the informative sessions and engaging networking opportunities. See old friends, make new friends, and hear …

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The 2021 Krabbe Translational Research Network Meeting

The KTRN Steering Committee invites those working to advance research in the biology, chemistry, physics, and related technologies of Krabbe disease to this meeting. The goal of this disease-specific meeting exists to collectively bring researchers, clinicians, and pharmaceutical companies together. This meeting will foster a robust exchange of ideas, discuss pre/post publications and research as …

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World Neuroscience and Psychiatry Conference

Episirus Scientifica holds the 3rd Edition of 2020 World Neuroscience and Psychiatry Conference as one of the events that brings together eminent neurologists, psychiatrists, psychologists and neuroscientists experiences from different countries and exchanges their views through scientific discovery, interactive sessions, keynote lectures, workshops and offers exceptional sessions, presentations with great education and networking opportunities for …

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NTSAD’s Annual Family Conference

Every year, the Annual Family Conference is an unforgettable experience for rare families and the cornerstone of NTSAD’s compassionate and expert Family Support Services. The Conference provides affected adults and children, their families and caregivers including parents, partners, grandparents, and healthy siblings the rare opportunity to connect with people that truly understand; learn about latest …

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The RARE Drug Development Symposium

he RARE Drug Development Symposium is a two-day interactive event in partnership with The Penn Medicine Orphan Disease Center that focuses on educating both beginners and advanced participants on the drug development process. Here, all members of the rare disease community are encouraged to explore their role in the rare disease drug development process in …

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11th European Conference on Rare Diseases and Orphan Products

The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.https://www.rare-diseases.eu/

2021 ULF Scientific Symposium

Virtual

Click Here to View the 2021 Agenda (Subject to Change) The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – To register click here or learn more at here. Medical and industry partners who register for the Scientific Symposium are also automatically registered for …

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2021 ULF Family Conference

Virtual

Click Here to View the 2021 Agendas (Subject to Change) It is with an over abundance of caution that we will be hosting our annual Family Conference virtually again this year, Friday and Saturday, June 25th and 26th. Registration is open to all who wish to attend, at no cost. Donations are always welcome, but …

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Hunter’s Hope Medical and Family Symposium

Virtual

?Hunter's Hope Medical and Family Symposium is a time for leukodystrophy families, medical providers, newborn screening lab personnel, industry partners, and supports from around the world to gather for four days of learning and collaboration. They will be meeting virtually again this year due to COVID. This format allows attendees from all over the globe …

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Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

NORD Rare Summit 2021

Each year, the NORD Summit, one of the largest multi-stakeholder events in rare disease, brings together participants spanning the rare community, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases and orphan products. https://nordsummit.org/

14th Congress of the European Paediatric Neurology Society (EPNS)

The EPNS Congress provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology, including basic science, diagnostic methods, and novel treatments. You can network with colleagues and industry partners all focused on delivering the best possible care for children with neurological disorders.https://epns-congress.com/

2022 RARE Drug Development Symposium

The Rare Drug Development Symposium, in partnership with the Orphan Disease Center of the University of Pennsylvania, brings together rare disease advocacy leaders and researchers to identify barriers to research, envision solutions, and accelerate progress for our communities. This two-day, in-person-only summit offers a unique opportunity to engage in interactive small-group workshops with experts and …

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