The RARE Drug Development Symposium

he RARE Drug Development Symposium is a two-day interactive event in partnership with The Penn Medicine Orphan Disease Center that focuses on educating both beginners and advanced participants on the drug development process. Here, all members of the rare disease community are encouraged to explore their role in the rare disease drug development process in …

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11th European Conference on Rare Diseases and Orphan Products

The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.https://www.rare-diseases.eu/

2021 ULF Scientific Symposium

Virtual

Click Here to View the 2021 Agenda (Subject to Change) The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – To register click here or learn more at here. Medical and industry partners who register for the Scientific Symposium are also automatically registered for …

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2021 ULF Family Conference

Virtual

Click Here to View the 2021 Agendas (Subject to Change) It is with an over abundance of caution that we will be hosting our annual Family Conference virtually again this year, Friday and Saturday, June 25th and 26th. Registration is open to all who wish to attend, at no cost. Donations are always welcome, but …

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Hunter’s Hope Medical and Family Symposium

Virtual

?Hunter's Hope Medical and Family Symposium is a time for leukodystrophy families, medical providers, newborn screening lab personnel, industry partners, and supports from around the world to gather for four days of learning and collaboration. They will be meeting virtually again this year due to COVID. This format allows attendees from all over the globe …

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Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1

Cure GM1 International GM1 Virtual Community Conference

Virtual

Cure GM1 is extremely proud to present a virtual conference for the GM1 community and families, biotech professionals, academic researchers, and physicians. Cure GM1 is the only 501(c)(3) entirely dedicated to GM1 gangliosidosis patient advocacy and GM1 research. Our virtual conference will be a series of webinars throughout the month of September. https://registration.socio.events/e/gm1