The ULF received donations in memorial or honorarium for the following during the month of June 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. in honor of Ashley WolfJohn Wolf Daxton WallaceSandy Wallace FiaLian Hobden Hunter GladdingCasandra CarrickHappy Birthday …
The ULF received donations in memorial or honorarium for the following during the month of May 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. in honor of Aidan LodgeSusan Lodge Alex HilesJackie Bowman Daxton WallaceSandy Wallace Ian ZavodnickJacquelyn Zavodnick …
The ULF received donations in memorial or honorarium for the following during the month of April 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Aidan ChapleauRobert KiddBarry MacDonaldMarg MacDonald All those fighting leukodystrophies and their loved onesClaudette Alice …
By Alexandra Worth Axel Riordan was born October 15, 2017. He was a healthy growing boy, hitting all his milestones on time. Around 18 months old Axel started developing problems while walking; locking knees, stumbling, eventually falling a lot. It all progressed slowly at first so at his two-year checkup with his pediatrician I mentioned …
The ULF received donations in memorial or honorarium for the following during the month of March 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Alec JumpJames Jump Leesa Jump Alex Bouley Charna Levine Brad Baumann Burdetta Baumann Bernard Baumann Brad …
Being part of a family that has endured the devastation of ALD since 1959 when my mother’s brother lost his battle and then losing both my older brother in 1972 and my younger brother in 1979. Knowing since 1987 when I was 18 years old that I am a carrier set the stage for more painful …
The ULF received donations in memorial or honorarium for the following during the month of February 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Henry Crawley David Crawley – I love you Henry. Holly Brenneman Heidi Edwards Neil …
by Shannon Reed Amera is our sweet 3 year old daughter who battles an extremely rare genetic disease called ACER3 related early childhood onset progressive Leukodystrophy. There are only about 20 known cases of this type worldwide! Our daughter was diagnosed with this progressive disease at age 2. She was initially presumptively diagnosed with other …
The ULF received donations in memorial or honorarium for the following during the month of January 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Aryabella Haeger Shannon Wright – In behalf of Star Chaser Crafts Aveline Brendel Lyndsay …
In honor of Rare Disease Day, we have come together to raise funds for type-specific programming. This shirt sale is made possible by a collaborative effort among these amazing organizations that will help offset future costs of type-specific programming. We are all in this together. Orders will be shipped directly the address that you specify. …
